Hi, I’m new here. My 11 year old son was diagnosed with mild OSA and moderate CSA a few days ago. Doctor prescribed Flonase while we look into what may be causing the CSA. He also has Benign Rolandic Epilepsy which causes him to have seizures while drifting to sleep. Doctor noted that he is an extremely restless sleeper, constantly tossing and turning and kicking his legs. We’re going to get iron and vitamin D checked soon.

Anyways, I was just hoping to hear experiences with Flonase and CSA. A recent MRI for epilepsy was clear but I’m worried they could have missed something. My mom (who clearly has undiagnosed sleep apnea) mentioned that her recent MRI showed an abnormally long brain stem. Anyone ever heard of that in reference to sleep apnea? Sorry I’m all over the place. We follow up with his neuro next week, just trying to gather as much information as possible in the meantime to hopefully improve my son’s quality of life.

Oh! Also to any parents out there who have a child with sleep apnea, do you recommend any nighttime monitors? My son was already at risk of SUDEP and this diagnosis only increases that risk.

Thanks for reading!

submitted by /u/alilwoundup
[link] [comments]

Skip to content