I had a discouraging appointment with my sleep doctor, and needed to vent to someone (long post). It’s been 1 month since I started CPAP, having been diagnosed with mild OSA. My sleep has been worse on CPAP, but I’ve been able to tolerate it every night. I’m using a ResMed Airsense 10 APAP (which is what I’m referring to when I say CPAP). I think according to her seeing my CPAP data, she was expecting that I’d be full of energy, like a changed person. But I told her that the app MyAir paints a rosy picture of my sleep, always giving me a perfect score of 100, but that’s far from the whole picture of my quality of sleep. It still takes me a long time to fall asleep, and I wake up 3 or 4 times a night, barely getting any deep sleep. I wake up every morning feeling like a truck ran me over, I never feel refreshed (this has been my case for well over 5 years).
I asked her about any other possible things that could be ruining my sleep, such as low melatonin or low vitamin D? She just asked, “your doctors haven’t tested you for that already?” Those were just possibilities off the top of my head, and I was disappointed she hadn’t thought of other ideas of things to test.
I asked her about possibly having UARS, and she said I definitely don’t, and that CPAP would fix that anyways. I asked if my pressure settings needed to be changed, as she set my range to be 5-14, and she said no, the CPAP will adjust to give me the settings I need. She said that my sleep apnea is GONE, but I feel like that’s not the case at all. I still wake up feeling like complete garbage. But according to her reading my data, I’m only getting AHI of less than 1, so my apnea is “fixed”.
She said maybe I have narcolepsy, and put in an order to do a more intense sleep study. I’m only 38 years old, 170 pounds, but I rarely take naps, and don’t suspect I have narcolepsy. I can’t just fall asleep anywhere, could never fall asleep while driving or anything. I’m willing to go along with anything that might help, but I worry about the cost, even with insurance.
I know that it takes some people a few months to start feeling the positive effects of CPAP. But I worry that I have deeper problems, like a weak jaw leading to UARS where a CPAP wouldn’t be enough to fix. I’ve read many people had good success with doing a home sleep study using WatchPAT One to learn they had UARS. I’m considering seeing an ENT to do a Drug Induced Sleep Endoscopy. I don’t know what my next course of action should be. I left my sleep doctor appointment feeling a bit defeated. Maybe someone had an opinion about my situation? Thanks.