Hi, I’ve been diagnosed with heavy sleep apnea when I was 16 years old (not overweight, non smoker or alcoholic). The doctors were massively confused, I was fitted with my mask.
After a few weeks I was submitted to the hospital because I had respiratory distress. Turned out that I have an completly swollen larynx. I’ve been in and out of the hospital for years now, visited a lot of different specialists, had a few ops, tried diffrend diets but nothing seems to help. My AHI is fluctuating between 25 and 80 for years now, sometime I have to spend weeks in the hospital because of how swollen my larynx is. I’m 21 now and I’m staring to get really anxious about how my life is going to be in the long term if this won’t stop, knowing that I could randomly suffocate one day.
Has anyone an idea or heared about similar problems? Please, if yes tell me. Any clue could help me 🙂 thank you!